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Mission:
Inspire the Rare Disease Community with hope through the power of sport


Vision:
Empower people to take action against rare diseases and be a catalyst for the medical community to find cures

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Uplifting Experiences

Featured Here : Jimmy & Colin

The Uplifting Experiences program creates special moments that enrich the lives of rare disease patients and their loved ones.

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Uplifting Experiences

Uplifting Athletes Bowling

Uplifting Athletes Bowling

An important part of the Notre Dame Chapter heritage is the annual bowling event the Fighting Irish started in 2014.

In June 2019, the Notre Dame Chapter used its event at the Strikes & Spares Event Center in Mishawaka, Indiana to host an Uplifting Experience for rare disease patients, families and caregivers.

More than 100 people – the largest attendance in the six-year history of the ND Chapter bowling event - packed the lanes for two hours of fun and inspiration.

“This was way bigger than anything we’ve ever had. It has been awesome to see how this event has grown and the impact the patients and football players have on each other,” said Uplifting Athletes Executive Director Rob Long, who attended the event Sunday morning.

“More than 30 Notre Dame football players showed up and they did a phenomenal job. There were more than 70 patients, siblings and caregivers The bowling alley staff did a phenomenal job. This is a community business giving back by donating their facility to make this possible. We are so proud of what this Uplifting Experience has become.”

Hospital Visits

Hospital Visits

Student-athlete leaders from Uplifting Athletes chapters visit local hospitals to inspire patients with hope. We also participate in the NIH Rare Disease Day every February.

Davidson Bowling Event

Davidson Bowling Event

 

Davidson Bowling Uplifting Experience

  

 

News

Justin Hopkin wears a lot of hats and makes them all fit to help serve others
Posted on Tuesday July 07, 2020
Justin Hopkin wears a lot of different hats. Doctor, father, husband, and rare disease advocate just to name a few. But, to Justin, no matter what hat he’s wearing, they all kind of look the same. That’s because Justin is committed to helping and serving others first. At the top of that list is his […] Continue Reading »
21 NFL Prospects join 2020 Reps For Rare Diseases campaign during NFL Combine
Posted on Thursday February 13, 2020
For the sixth consecutive year, Uplifting Athletes is empowering NFL prospects with the opportunity to use the NFL Combine as a platform to give back by raising funds and awareness in support of the Rare Disease Community. Reps For Rare Diseases has been used as a way for athletes to give back at a pivotal […] Continue Reading »
39 Uplifting Athletes Chapter Leaders put through paces in Atlanta during 11th annual Leadership Development Conference
Posted on Tuesday January 28, 2020
The cornerstone of the Uplifting Leaders program is our network of Chapters on campuses across the country led by college football student-athletes. This past weekend, 39 leaders from 20 schools gathered in Atlanta for a high impact and fast paced weekend of learning and development during our 11th annual Uplifting Athletes Leadership Development Conference. The […] Continue Reading »
Beyond The Trophy 2019: Get to know Florida State Chapter President and linebacker DeCalon Brooks
Posted on Monday December 02, 2019
Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter for our Beyond the Trophy series. Name: DeCalon Brooks College: Florida State University Height, weight, class, position: 5-10, 209-pound, redshirt sophomore, linebacker High School: Gaither High School in Tampa, Fla. About DeCalon: Became an impact […] Continue Reading »
Notre Dame Chapter welcomes Rare Disease patients, siblings and caregivers to Uplifting Experience bowling event
Posted on Wednesday July 03, 2019
An important part of the Notre Dame Chapter heritage is the annual bowling event the Fighting Irish started in 2014. This past weekend the Notre Dame Chapter used its event at the Strikes & Spares Event Center in Mishawaka, Indiana to host an Uplifting Experience for rare disease patients, families and caregivers. More than 100 […] Continue Reading »
For Seattle Seahawks WR Malik Turner the rare disease cause is personal
Posted on Tuesday November 27, 2018
Seattle Seahawks rookie wide receiver Malik Turner is passionate about the rare disease cause. He took part in Lift For Life as a member of the Illinois Chapter of Uplifting Athletes. Turner also supported his cause by participating in the Uplifting Athletes Reps For Rare Diseases campaign for his NFL Pro Day. It was during […] Continue Reading »
Special day on campus for Princeton-Penn rivalry game involves Rare Disease Community
Posted on Wednesday November 21, 2018
You could feel the electricity in the air Saturday on campus as the Princeton football team prepared to host rival Penn in the final game of the season. The Tigers were on the cusp of an undefeated season and claiming the Ivy League championship. Saturday was also a special day for the Rare Disease Community […] Continue Reading »
Penn and Princeton football programs team up to make 110th meeting between the rivals Saturday a Rare Disease Awareness Game
Posted on Tuesday November 13, 2018
Uplifting Athletes is proud to announce that the Princeton and Penn football programs have joined forces for their upcoming 2018 regular season finale to shine a spotlight on the Rare Disease Community. The chapter leaders from each school, with the support of both universities, worked together to make the match-up between the Tigers and Quakers […] Continue Reading »
One mother’s uplifting ALGS rare disease journey for her family
Posted on Tuesday October 23, 2018
  Uplifting Athletes hosted Roberta Smith and her daughters for an Uplifting Experience at the August 31st Rare Disease Awareness Game between Syracuse and Western Michigan in Kalamazoo, Michigan. We were fortunate enough to learn Roberta’s Rare Disease story and we are honored to provide the platform for Roberta to share her story. By Roberta […] Continue Reading »
Western Michigan and Syracuse football programs team up Friday night to shine a spotlight on Rare Disease Community in 2018 opener
Posted on Thursday August 30, 2018
Uplifting Athletes is proud to announce that the Western Michigan and Syracuse football programs have joined forces for their upcoming 2018 season opener to shine a spotlight on the Rare Disease Community. The chapter leaders from each school, with the support of both universities, worked together to make the match-up between the Broncos and Orange […] Continue Reading »

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Uplifting Athletes is a 501(c)3
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